Publish date: 21 September 2022
NHS Cheshire & Merseyside Combined LeDeR Team aims to improve care, reduce health inequalities, and prevent premature mortality of people with a learning disability and autistic people by reviewing information such as GP records, health/social care records. This includes having conversations with family members (or someone close) and at least one other person involved in the care of the individual who died about the health and social care support people received.
The aims of the programme are achieved by:
• Delivering local service improvement, learning from LeDeR reviews about good quality care and areas requiring improvement
• Driving local service improvements based on themes emerging from LeDeR reviews at a regional and national level
• Influencing national service improvements via actions that respond to themes commonly arising from analysis of LeDeR reviews.
From 4th January 2022, the programme extended to include the reviewing of lives and deaths of people with a clinical diagnosis of autism. Notifications are accepted for people aged 18 or over with a clinical diagnosis of autism who have died on or after 1 January 2022.
How to notify the LeDeR team of a death
Referrals for all deaths for those with a Learning disability and/or Autism diagnosis can be notified via the LeDeR platform by anybody i.e., professionals or family members. Referrals for all deaths for those with a Learning disability and/or Autism diagnosis can be notified via the LeDeR platform by anybody i.e., professionals or family members.
Follow this link to the LeDeR notification system and click on “report a death” button.
It is important that as much information is completed as soon as possible in the Notification form (not just mandatory fields), to enable the reviewers to start undertaking the review and avoid queries and delays – points of contact such as their GP, Next of Kin, Provider and who has reported the death are key information to enable reviewers to commence the review.
If you have any queries or questions, please contact cmicb-h